Repaired Atrioventricular Septal Defects
Although your heart has been repaired, and you may feel very well, we recommend long term follow up for most so we can watch out for certain problems.
Despite successful repair, there is often some leak on one or more of the heart valves. This leak is often very minor and does not change over the years. However in some cases, the leak worsens and requires either medication or another operation to fix it.
In some patients a narrowing can develop in one of the valves, which occasionally requires another operation to fix it.
Because you have had previous heart surgery, you will have some scars in your heart. You have a slightly higher chance than normal of developing heart rhythm problems in later life.
Whether you are a man or woman there is a higher risk than usual of your children being born with a similar heart condition. Sometimes the holes are worse in the next generation. If you are planning a pregnancy, we can talk to you about this in more detail. Sometimes people choose to have a detailed look at the babies’ hearts by ultrasound before they are born to assess any future problems. If you are a woman then we also like to make sure your heart will cope with being pregnant and therefore we would like to see you before you become pregnant.
Regular exercise to a moderate level is encouraged. It is good for your general health and wellbeing and beneficial for your heart and circulation. Activities such as walking, cycling, and swimming are ideal and it is important to warm up and warm down slowly. We would not usually restrict your physical activities. If you have problems with leaky valves or heart rhythm you may have a reduced exercise capacity and you will need to modify your activities to cope with your symptoms. Your cardiologist will tell you if you need to restrict any physical activity.
Adult Congenital Heart Team
Leeds General Infirmary
Reviewed April 2014