• The Adult Congenital Cardiac Nurse Specialists

    We are experienced Cardiac Nurses who help care for adults with congenital heart problems and their families. We work as members of the Adult Congenital Heart Team, in outpatient clinics and can make visits to the patients’ home as appropriate.

    The team provide a service to any patient and family living in the Yorkshire or North Derbyshire.

    The service operates weekdays — 08.00 – 16.00 hrs

  • There is also an answer phone where messages can be left or you can email us for advice or information.
    How we may be able to help
    We can assist you and your family to understand your heart condition and treatments

    • By being a link with medical staff
    • By being a resource for your GP and staff working in District General Hospitals
    • By giving advice about any symptoms related to your heart
    • By liaising with careers/employment advisors
    • By discussing family planning & pregnancy
    • By advising on issues such as holding a driving licence, travelling abroad
    • Prepare you for surgery or keyhole surgery
    • By being there to listen
      Our telephone number is 0113 3928154
      Our email address – Email

  • Clinical Psychology and Counselling Service for Adult Congenital Cardiology

    Living with a heart condition can be a very challenging experience. It is not uncommon to go through a range of different thoughts and feelings about your health, which can impact on mood, well-being and quality of life.
    We offer confidential emotional support to help you manage and overcome difficult feelings about your heart condition, such as stress, worry, panic, frustration and anger, low mood and sadness.

  • We start by offering an initial assessment appointment to gather information about you and the things you may be finding difficult, we will then make a plan to help. First sessions usually last an hour to an hour and a half and can be done on the phone or in person. We only share what we have talked about with the professionals involved in your care.
    We recognise it can sometimes feel difficult to talk through personal thoughts and feelings, however, we are experienced clinicians who are trained to listen, we always go at your pace and you are welcome to bring a close friend or family member along with you if helpful.
    To speak to a member of the team, please contact us on 0113 3926796 (Mon to Fri 9am to 5pm) or ask your Specialist Nurse or Consultant to get in touch.

  • Support Groups

  • Leeds Congenital Heart Unit Facebook Page

    All the latest news from the Leeds Congenital Heart Unit
    Leeds Congenital Hearts Facebook Page

  • Children’s Heart Surgery Fund

    Supporting congenital heart disease patients from fetus through to adulthood.
    Tel: 0113 3925742

  • The Somerville Foundation

    Tel: 0800 854 759

  • British Heart Foundation

    Tel: 0300 330 3311

  • Turn 2 Us

    Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.
    Turn 2 Us