Advice & Support Groups

Advice

Download our Children’s Specialist Nurse leaflet

Our specialist nurses can help with more information about your child’s heart condition – we can provide written details and diagrams or can arrange to meet with you personally to discuss this.

If you have local health professionals, such as Health Visitors, School Nurses, Community Nurses or family doctors, involved in the care of your child, we would be happy to provide them with information about your child’s heart condition and related issues.
Contact the Children’s Cardiac Nurse Specialist team
if you need information, advice or support on 0113 392 5467.

Support groups

These groups provide information and support for parents/patients. A list of these support groups are situated at the back of the folder.

They can provide all kinds of useful information and advice for those caring for a sick child.

British Heart Foundation

Tel: 0300 330 3311
www.bhf.org.uk

Cardiac Risk in the Young

Tel: 01737 363 222
www.c-r-y.org.uk

Cardiomyopathy Association

Tel: 0800 018 1024
www.cardiomyopathy.org

Children’s Heart Federation

Tel: 0808 808 5000
www.chfed.org.uk

Down’s Heart Group

Tel: 0300 102 1644
www.dhg.org.uk

Heartline

www.heartline.org.uk

Little Hearts Matter

Tel: 0121 455 8982
www.lhm.org.uk

Max Appeal!

Tel: 0300 999 2211
www.maxappeal.org.uk

Marfan Trust

Tel: 020 8725 1189
http://marfantrust.org/

Turn 2 Us

Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.
Turn 2 Us

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