Contact the Children’s Cardiac Nurse Specialist team if you need information, advice or support on 0113 392 5467
These groups provide information and support for parents/patients. A list of these support groups are situated at the back of the folder.
They can provide all kinds of useful information and advice for those caring for a sick child.
Support for families affected by Trisomy 13 (Patau’s syndrome), Trisomy 18 (Edwards’ syndrome) and related disorders.
Aiming to improve the detection, diagnosis & care of babies with serious heart conditions, before & immediately after birth.
Turner Syndrome Support Society
The Turner Syndrome Support Society is a national charity caring for the needs of those with Turner Syndrome throughout the United Kingdom.