Specialist Nurses, Cardiac – How the nurse specialist can help you:
Information for you
If you would like more information about your heart condition we can provide written details and diagrams or can arrange to meet with you personally to discuss this.
Information for others
If you have local health professionals, such as School Nurses, Community Nurses or family doctors, involved in your care, we would be happy to provide them with information about your heart condition and related issues.
For most young people having a heart condition does not prevent them from holding a driving license. However, if you have an irregular heart rhythm, or have been fitted with a pacemaker, the Driving Vehicle License Authority will need to be informed and provision of medical information may be necessary.
Charities who offer support
The Somerville Heart Foundation are a charity for adults with congenital heart disease. They offer a wide range of support – see their website for more details.
If you have a Fontan Circulation, Little Hearts Matter are a charity who provide support for children, teens and now adults too. They have a youth zone where you can learn more about your heart condition and speak to other people with similar heart conditions if you wish.
The British Heart Foundation have Teen Heart for 13-18 year olds, or One Beat for 18-30 year olds living with a heart condition.
Just want to talk?
There may be times when you feel that you would like to talk to someone outside of the family. Please contact us and we can arrange to meet up, either at your home or at the hospital.
I don’t know what to say?!
If your school, college, employer is asking for advice regarding your heart condition, please contact us as we can provide written information or even visit the school, if more appropriate.
Leeds Congenital Heart Unit Facebook Page
All the latest news from the Leeds Congenital Heart Unit click here.
Children’s Heart Surgery Fund
Supporting congenital heart disease patients from fetus through to adulthood.
Tel: 0113 3925742
Turn 2 Us
Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.
Turn 2 Us