- Meet The Team
- Transition to Adult Congenital Cardiac Services
- Coming in to Hospital
- Surgery and Managing Your Discomfort
- Cardiac Catheter
- Ablation Procedure
- Looking after your oral health
- Lifestyle and Exercise Advice
- Periods, contraception and pregnancy
- Your Views
- Confidentiality and Consent
Specialist Nurses, Cardiac – How the nurse specialist can help you:
Information for you
If you would like more information about your heart condition we can provide written details and diagrams or can arrange to meet with you personally to discuss this.
Information for others
If you have local health professionals, such as School Nurses, Community Nurses or family doctors, involved in your care, we would be happy to provide them with information about your heart condition and related issues.
For most young people having a heart condition does not prevent them from holding a driving license. However, if you have an irregular heart rhythm, or have been fitted with a pacemaker, the Driving Vehicle License Authority will need to be informed and provision of medical information may be necessary.
Charities who offer support
The Somerville Heart Foundation are a charity for adults with congenital heart disease. They offer a wide range of support – see their website for more details.
If you have a Fontan Circulation, Little Hearts Matter are a charity who provide support for children, teens and now adults too. They have a youth zone where you can learn more about your heart condition and speak to other people with similar heart conditions if you wish.
The British Heart Foundation have Teen Heart for 13-18 year olds, or One Beat for 18-30 year olds living with a heart condition.
Just want to talk?
There may be times when you feel that you would like to talk to someone outside of the family. Please contact us and we can arrange to meet up, either at your home or at the hospital.
I don’t know what to say?!
If your school, college, employer is asking for advice regarding your heart condition, please contact us as we can provide written information or even visit the school, if more appropriate.
Leeds Congenital Heart Unit Facebook Page
All the latest news from the Leeds Congenital Heart Unit click here.
Children’s Heart Surgery Fund
Supporting congenital heart disease patients from fetus through to adulthood.
Tel: 0113 3925742
British Heart Foundation
Tel: 0300 330 3311
The Somerville Foundation
Tel: 0800 854 759
Tel: 01789 450787
Cardiac Risk in the Young
Tel: 01737 363 222
Children’s Heart Federation
Tel: 0808 808 5000
Tel: 0800 018 1024
Down’s Heart Group
Tel: 0844 288 4800
Little Hearts Matter
Tel: 0121 455 8982
Tel: 020 8725 1189
Tel: 0300 999 2211
Turn 2 Us
Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.
Turn 2 Us