Network
- About
- The Network Team
- Our Paediatricians in the Network
- Our Adult Cardiologists in the Network
- Guidelines and Pathways for Paediatricians and Cardiologists
- Guidelines and Pathways for Adult Cardiologists
- Guidelines and Pathways for Neonatologists
- Guidelines and Pathways for obstetricians and fetal sonographers
- Education events
- Recorded education sessions related to ACHD care
- Recorded education sessions related to Neonatal care
- Board meetings
- Our patient and parent reference group
- Children's Hospices in our Network
- Feedback
Children's Hospices in our Network
-
Children’s hospices provide 24 hour care
and support to children and their families.
They are a team of professionals made up of doctors, nurses, midwives, play specialists, care
staff, complimentary therapists, counsellors,physiotherapists, music therapists and volunteers.The teams are experienced in caring for babies, children, young people and their families who are affected by complex conditions. They can also offer support before your baby is born. They offer support from a Children’s Hospice setting or their Hospice at Home service which can help you in your own
home. They offer a number of services tailored to meet the individual needs for you and your family.As well as nursing care they can provide:
Respite / Short breaks Overnight stays as well as day care for children during term time and holidays. This can be specifically for the child or it can be stays as a family (and pets). All facilities are available for family groups.
Emotional support This is available to all family members including parents, grandparents and siblings. There are
dedicated sibling days, events and sibling support workers. Play support Support can be offered through play, music and creative therapies. Children’s Hospices have play rooms, music rooms, multi-sensory rooms as well as large outdoor gardens and hydrotherapy or spa pools.Homemade meals are provided by in-house chefs and they can accommodate any of your dietary requirements.
End of life care is also offered in all Children’s Hospices or together in a home setting. Staff are experts in this area
and their priority is comfort and symptom control. They offer memory making opportunities, emotional support
and counselling to ensure your family feel well supported.Bereavement support is offered in many forms and will be tailored to your individual needs.
There is no charge to families for using any of the services provided by your local Children’s Hospice.
-
-