Support Groups

Advice

Contact the Children’s Cardiac Nurse Specialist team
if you need information, advice or support on 0113 392 5467.

These groups provide information and support for parents/patients. A list of these support groups are situated at the back of the folder.

They can provide all kinds of useful information and advice for those caring for a sick child.

Leeds Congenital Heart Unit Facebook Page

All the latest news from the Leeds Congenital Heart Unit
Leeds Congenital Hearts Facebook Page

Children’s Heart Surgery Fund

Tel: 0113 3925742
http://www.chsf.org.uk/

Arrhythmia Alliance

Tel: 01789 450787
www.heartrhythmcharity.org.uk

British Heart Foundation

Tel: 0300 330 3311
www.bhf.org.uk

Cardiac Risk in the Young

Tel: 01737 363 222
www.c-r-y.org.uk

Cardiomyopathy Association

Tel: 0800 018 1024
www.cardiomyopathy.org

Children’s Heart Federation

Tel: 0808 808 5000
www.chfed.org.uk

Down’s Heart Group

Tel: 0300 102 1644
www.dhg.org.uk

Heartline

Tel: 033 0022 4466
www.heartline.org.uk

Little Hearts Matter

Tel: 0121 455 8982
www.lhm.org.uk

Max Appeal!

Tel: 0300 999 2211
www.maxappeal.org.uk

Marfan Trust

Tel: 020 8725 1189
http://marfantrust.org/

Turn 2 Us

Turn to us is a national charity that helps people in financial hardship gain access to welfare benefits, charitable grants and support services.
Turn 2 Us