THE REGIONAL INHERITED CARDIOVASCULAR CONDITIONS SERVICE
The Inherited Cardiac Conditions service is based at the Yorkshire Heart Centre and the Regional Genetics Centre in Leeds. It is a specialised genetic and cardiac service covering the Yorkshire region and run by a dedicated multidisciplinary team.
AIMS OF THE SERVICE
Are to provide information, risk assessment and appropriate screening for individuals and
Families who are suffering from or at risk of an inherited cardiac condition when there:
Has been a sudden, unexplained cardiac death in a young person.
Has been a sudden arrhythmic death.
Is a family history of Cardiomyopathy.
Is a family history of cardiac arrhythmias e.g. Long QT, Wolfe Parkinson White (WPW),
Are a few members of the family who have had pacemakers fitted.
Is a family history of connective tissue disorders e.g. Marfans, Ehlers- Danlos.
Is a family history of chromosomal cardiac conditions.
Is a family history of congenital heart defects.
Referral to the service can be made by GP, hospital Consultant or health care professional.
If you are unsure if a referral is appropriate or would like more information and advice please contact the service Coordinator.
We have a “Core Team” which consists of:
Kath Ashcroft – Service coordinator and Genetics Counsellor
Dr Stephen Page – Cardiologist Cardiologist & Electrophysiologist
Dr Alex Simms – Consultant Cardiologist
Dr Elspeth Brown – Consultant Paediatric Consultant
Dr Helen Michael – Consultant Paediatric Consultant
Dr Christ Bennett – Consultant Geneticist
Dr Jennifer Thompson – Consultant Geneticist
Dr Katrina Prescott – Consultant Geneticist
Jude Edhouse – Genetics Counsellor
Jayne Slack – Senior Counsellor
Annabel Nixon – Clinical Nurse Specialist
Jan Forster – Specialist Echocardiographer
We also have a number of “Supporting Services” that we work closely with:
Dr Lisa Barker – Consultant Pathologist
Dr Waz Baig – Consultant Cardiologist
Dr Rob Sapsford – Consultant Cardiologist
There are several ways in which patients are referred to the Inherited Cardiac Conditions Service:
Self referral – patients are now entitled to contact us directly to request an appointment if they have, or are at risk of having an inherited cardiac condition. We will then contact their GP to get a formal referral.
GP referral – any patient with, or at risk of having an inherited cardiac condition who isn’t already being seen should be referred.
Hospital referrals – any patient who has a suspected or confirmed diagnosis can be referred. Reasons for referral might include diagnostic confirmation, exclusion of phenocopies (conditions that mimic a genetic condition), genetic testing, risk stratification, management advice, long term follow up, family screening.
How to contact us
The Yorkshire Heart Centre
Leeds General Infirmary
Great George Street
Dr Elspeth Brown, Dr Helen Michael
Consultant Paediatric Cardiologists
Tel Secretary 0113 3925738
Dr Stephen Page and Dr Alex Simms
Tel 0113 3926619
Dr C Bennett, Dr J Thomson,
Dr K Prescott
Dept Clinical Genetics, Level 3
Chapel Allerton Hospital
Leeds LS7 4SA
Tel secretary 0113 3924563
ICC Co-ordinator, Genetic counsellor
Tel: 0113 3924436 sect 0113 3924573
Supported by the BHF
E-mail: jayne.slack@ nhs.net
Supported by BHF
ICC nurse specialist